PNEUMONIA
Khyle currently has pneumonia. It got worse before it got better, we still have 4 doses of antibiotics to finish but we hope we are at the end of this little crisis. This has been the only illness since we left the hospital on June 17th so I am grateful for that and also for the fact that they did not admit it. A few rough nights at home but I much prefer keeping him AT HOME as long as I have all the equipment/meds to do the job right.
INSURANCE
We are unfortunately going through an insurance change. The new provider seems a bit inferior and we are losing our pediatrician for Khyle & Maya. The timing of the change created quite a lot of stress for me because I had to get Maya's yearly check-up and immunizations done so she can go back to school in one week. It cost lots of money I didn't have and now we are in a frantic hunt for a doctor who can manage Khyle and is in our network. I have a lead on a few people so will go and do some consultations. Still have not found providers in my network for medical equipment and supplies, so the search continues.
NEW THERAPIST
Sadly we have lost one of our favorite people in Khyle's chain of care--Melody our physical therapist. She moved to be with her family and we are devastated but we start with a new PT in 2 weeks. We are looking forward to another great lady who will fall madly in love with our little warrior.
PROGRESS
I do not know Khyle's current weight but we are certain he has gained weight. I think he is about 23 lbs (just a guess) but he actually has fat on his legs and his cheeks are chubby again. We are happy with the new feeding system now via pump. It works well and the weight gain is awesome. It is very expense to maintain though and so we hope we can figure out something manageable going forward.
Our PT did think she saw improvement in Khyle since the cranial surgery. She thought he was more cooperative & alert. She suggested that the next 3 months could prove tremendous growth for Khyle in terms of his physical and cognitive development.
MANY THANKS
In case we have not already thanked all of you who so lovingly helped us out this summer then I wish to say again that you were awesome!! So many of you prayed, made meals, gave us rides to/from hospital and showered us with love and encouragement. To our family at Rockville Assembly of God (RAG) who gave money, time and prayer, God's blessings on you for taking such good care of us. To my family and friends, thanks for praying, visiting, calling & just being there for us. Even though we were expecting to go to Children's for the cranial surgery it was very rough being admitted for malnourishment and spending over 21 days there, also having the big setback we did with the surgery was scary. Thank you for being there!
FUNDRAISING
In a few weeks Quincy and I will begin a fundraising campaign because the medical expenses, even with insurance, are tremendous. The insurance pays 80% so we have the 20% balance to pay on all hospitalizations. Also there are a lot of equipment & supplies not covered by our insurance. Please keep an eye out for that posting/email and be prayerful as to whether you may consider giving. But more on that later...
We are happy the boy is home, growing and succeeding. We are happy to be in this area where we are able to get such great medical care and we are thankful for our RAG & Fourth families who are God's arms around us. We miss our family tremendously and hope to see you soon, until then FB & email will have to suffice. Be blessed everyone and as always keep us in your prayers.
