Battle Photos

Very swollen yesterday 6/13

Daddy comfort

It's my right to FUSS!

My Biggest Battle Scar!!

Surgery Picture Gallery

Last night with full head of hair

Sending my boy to surgery--- Post-op - First surgery

See 'buckled' plate 6/10 ---Dr. Keating says 'Do-over'

Just a few shots --will load more later.

Tummy Trouble

Okay, I was preparing a much more desperate post--Khyle's tummy was hugely swollen and we had to take a x-ray this morning & things did not sound good at all but some relief has come. I interrupted that post because GI came to examine him & miraculously his stomach was almost back to normal and very soft. Pheww!!

A doctor from the general surgery team was in earlier and explained that the x-ray revealed that his larger intestine is 'very enlarged' and it could 'rupture' and they would have an OR prepped for him 'just in case'. She said it very matter-of-factly but I began to get this feeling that maybe I was being 'punked' or I was in an episode of the Twilight zone. Certainly no one was suggesting 3 surgeries in 5 days!!!

Yeah but no less than 8 doctors have been in here to assess him since I started this post, the pediatric surgeon thinks he looks good and may resume food this evening. Until then he will be on IV drip.

Well please continue to pray over his digestive system for all to work well and for him to be eating again soon.

That Big Head Boy

Ok, so he looks a little funny but we are being warned that the worse of the swelling will come in the next two days. But he still looks like himself with a more protruded forehead & hooded eyes. He roused & cried which actually made me happy to see him being his little tyrant self again. They swiftly gave him some more painkiller though & he is resting with Daddy watching over him.

It is hard to see-- the bandages, the blood draining, the swollen eyes he can't quite open, but I am ok. I am his Mommy & if he can take it, I can take it. We are pleased the doctors declared it a 'successful surgery'. The RN in the OR said, "This is turning out to be an easy case for us." Thank you God! For directing everything and watching over our sweet boy.

Thank you all for the prayers and thanks RAG family for the good food.

Yes to Surgery

Friends it has been determined that they will proceed with the Cranial surgery as planned next week Wednesday June 9th, so start the prayers for that. I just saw the GI team, spoke with Dr. Scheider. He is very happy with Khyle's weight gain, his electrolyte balance and overall health. He'll be getting more fiber. The case manager is checking with our insurance to help us secure a feeding pump which will enable us to keep this regimen at home.

Dr Keating & his team will visit later for a consultation.

I am very pleased with this news.