Very swollen yesterday 6/13
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Our dear sweet boy Khyle, aka 'Khyle the Warrior' was born with Apert Syndrome and is fighting a great fight to live and thrive and grow. We are sharing his journey because we want our family & friends to pray with us and know how we are progressing. Perhaps along the way we will also educate and encourage. Definitely we hope to celebrate this amazing, special boy.
Followers
Khyle's Photo Albums
Meet Khyle
Khyle was born June 18, 2007 in Nassau, Bahamas at Princess Margaret Hospital. He was whisked off to the NICU immediately and was diagnosed the following day with a rare genetic craniofacial condition called APERT Syndrome. After much breathing trouble at 9 weeks he came home and seemed quite the normal little boy except for the fused fingers & toes. However due to severe illness Khyle suffered traumatic brain injury in May 2008. In addition to Apert, his diagnosis includes--
-Cerebral atrophy
-Developmental delay
-Mobility issues
-Tracheostomy tube for airway
-Oxygen for breathing
-Vision impaired
-Hearing impaired
-Fed via G-tube, nothing orally
My diagnosis is that he his altogether lovely! He is a bright beautiful boy who loves Mommy, Daddy & big sis Maya and who needs & deserves love. He has the most beautiful brown eyes and gorgeous curly head of locks. He loves music and he will talk your ear off with his little dolphin squeak sounds he makes out of his trach.
He has fought back from death literally and he gives the good fight everyday--Therefore He Shall Be Called---
KHYLE THE WARRIOR!
-Cerebral atrophy
-Developmental delay
-Mobility issues
-Tracheostomy tube for airway
-Oxygen for breathing
-Vision impaired
-Hearing impaired
-Fed via G-tube, nothing orally
My diagnosis is that he his altogether lovely! He is a bright beautiful boy who loves Mommy, Daddy & big sis Maya and who needs & deserves love. He has the most beautiful brown eyes and gorgeous curly head of locks. He loves music and he will talk your ear off with his little dolphin squeak sounds he makes out of his trach.
He has fought back from death literally and he gives the good fight everyday--Therefore He Shall Be Called---
KHYLE THE WARRIOR!
Blog Archive
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2010
(49)
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June
(37)
- One Week Home
- Happy Birthday Little Warrior!!
- WE ARE HOME!!!!!!
- Equipment Bugs...
- Warrior Pictures
- [Cue the "Jeopardy" time track...]
- Issues
- One More Day?
- Battle Photos
- Surgery Picture Gallery
- Food! Glorious Food!
- Tummy Trouble
- A (Somewhat) Quiet Day
- New Digs
- Battle Scars - A Post By Khyle The Warrior
- IT IS WELL
- Just a quick note--we are out of the second surger...
- Unexpected Setback, Back to Surgery
- Praise Shout, and Prayer Request
- That Big Head Boy
- One Down!!!!!
- 12 OClock, And All's Well!
- The Morning of the Day
- I signed the consent form a few minutes ago author...
- Day of Prayer
- Fat Feet!
- A Room with a View
- Fussy Boy
- Kisses for Khyle
- More Poundage...
- Mmmmmmm....Baclofen! Yummy!
- Staying at Children's
- Under my own steam...
- Yes to Surgery
- No Rest for the Weary
- That Boy is Looking Good!
- Hanging with Khyle
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June
(37)
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