Tuesday, June 8, 2010

I signed the consent form a few minutes ago authorizing the Craniofacial team to go ahead and do the big surgery on Khyle tomorrow at 6AM. For the record, as you pray today, the procedure is called a BIFRONTAL CRANIAL ADVANCEMENT. Everything else in Suzette's post yesterday is spot on.

Some specific issues:
They are bumping up the Vitamin D and the salt in his regimen because both his Vitamin D and his sodium levels are a tad low. Pray for perfect balance.

We are considering what to do with him after the surgery. Does he go to a sort of halfway house where they can monitor him if he needs it, or [and obviously our preference] can we bring him home safely as soon as next Monday? Obviously, we want him home, but pray for wisdom and guidance to do what is best for all of us. He'll probably want to be home as well.

We have spoken to the Case Manager from the hospital who is liaising with our insurance about getting the equipment Khyle will need at home. Pray that this works out.

Suzette and I are tired, bone tired. Pray that we get supernatural rest and find joy in Christ, each other, our children and our families.

More as the day progresses, no doubt.

1 comment:

Unknown said...

Please know that Khyle's entire Infant & Toddler Team is there with you in heart and spirit! He is known as the 'warrior' for a reason, as we have found over the past several months. Now that he is up to 'fighting weight' he is ready to take on this next battle.
Melody