One Week Home

It's been one week since Khyle came home and we are so enjoying him being here & not running to the hospital everyday. You can see that he is very comfortable being in his own bed, having us at his beck and call and not having doctors & nurses poking & prodding him every minute. No needles, no x-rays, no changing trach ties at 6am in the morning & very little equipment beeping. Of course we are over the moon to see his sweet little face in the bed next to ours at night and tucking him under our arms to hang out with us in the evenings.

We had some excitement with his feeding tube being blocked twice already but we were able to clear it. We're working with tons of new medical equipment for this, that and the other thing. We are learning how to (and not to) navigate through the insurance maze for someone with Khyle's extensive medical needs (& costs) and we had a lovely visit from a home healthcare nurse to go over everything we do with Khyle, making sure we are doing our very best. I think we got an 'A' on our report card for that and I must give a lot of the credit to Pat Bell who helps me take care of Khyle everyday.

We will have several follow-up appointments at Children's in July and I am also on the search for a new Pediatrician for Khyle & Maya because of a change in our insurance provider.

We will keep you posted on the doctors' reports for Khyle's progress. So far, so good. Praise God from whom all blessings flow.