Good Doctor's Visit

We had our first doctor's visit back at Children's since our discharge yesterday. We went back to see the GI nurse to evaluate Khyle's nutrition and weight. I was very happy he didn't lose any weight, he's still over 19 lbs, very close to 20 but they had hoped he had gained more. We hope to keep beefing him up but it may go slower at home.

We did change his feeding tube from a 12fr (size) g-tube to a 14fr Mic-E button. This is smaller and less obtrusive. You do have to attach an extra tube for hooking up to the feeding pump but can remove it when he is not eating and you don't have something dangling down that Khyle can pull out. Many of you know that Khyle pulled his feeding tube out 3 times now, the last time resulting in emergency stomach surgery & a 10-day spell at CNMC. But being his usual self he did 'unlock' the feeding cord this morning, but we caught it early and put it back on. He was soooo pleased with himself :) I am happy with the increase in size and hope this will prevent clogging. We were having some serious clogs with the feeding pump last week and I was exasperated so they bumped him up in size. He used to have a 14 fr. before the surgery in March and we had very few blocks.

We will be going back to the neurosurgeon Dr. Keating on July 17th for a checkup on the cranium. Not sure if we will resume in-home physical therapy before then.

I would like to ask for your payers concerning our new insurance. The parent company changed providers and it means that some of our doctors are suddenly 'out of network'. We are prayerful that all will be worked out, but please continue to pray.

Khyle is doing well, will post some new pictures soon. God bless.