The great thing that is happening here is that they are measuring every ounce that is going in and then every thing that is coming out. It was assessed this morning that Khyle's pee measured just 158ml when they would like to see 180ml. (5ml=1 teaspoon/30ml=1 oz) So that means he is still dehydrated, so they gave him a large amount of saline fluid (300ml) at one time via an IV drip to replenish his body.
So this is how it will go daily. How much food/liquid does his body need, is he processing the nutrients, is he peeing enough, pooping enough? They will also look at his blood work from yesterday see how he is metabolizing every thing.
He is comfortable and sleeping now after his respiratory therapy. It is Sunday but I should see the doctor by midday.
More later...
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Our dear sweet boy Khyle, aka 'Khyle the Warrior' was born with Apert Syndrome and is fighting a great fight to live and thrive and grow. We are sharing his journey because we want our family & friends to pray with us and know how we are progressing. Perhaps along the way we will also educate and encourage. Definitely we hope to celebrate this amazing, special boy.
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Meet Khyle
Khyle was born June 18, 2007 in Nassau, Bahamas at Princess Margaret Hospital. He was whisked off to the NICU immediately and was diagnosed the following day with a rare genetic craniofacial condition called APERT Syndrome. After much breathing trouble at 9 weeks he came home and seemed quite the normal little boy except for the fused fingers & toes. However due to severe illness Khyle suffered traumatic brain injury in May 2008. In addition to Apert, his diagnosis includes--
-Cerebral atrophy
-Developmental delay
-Mobility issues
-Tracheostomy tube for airway
-Oxygen for breathing
-Vision impaired
-Hearing impaired
-Fed via G-tube, nothing orally
My diagnosis is that he his altogether lovely! He is a bright beautiful boy who loves Mommy, Daddy & big sis Maya and who needs & deserves love. He has the most beautiful brown eyes and gorgeous curly head of locks. He loves music and he will talk your ear off with his little dolphin squeak sounds he makes out of his trach.
He has fought back from death literally and he gives the good fight everyday--Therefore He Shall Be Called---
KHYLE THE WARRIOR!
-Cerebral atrophy
-Developmental delay
-Mobility issues
-Tracheostomy tube for airway
-Oxygen for breathing
-Vision impaired
-Hearing impaired
-Fed via G-tube, nothing orally
My diagnosis is that he his altogether lovely! He is a bright beautiful boy who loves Mommy, Daddy & big sis Maya and who needs & deserves love. He has the most beautiful brown eyes and gorgeous curly head of locks. He loves music and he will talk your ear off with his little dolphin squeak sounds he makes out of his trach.
He has fought back from death literally and he gives the good fight everyday--Therefore He Shall Be Called---
KHYLE THE WARRIOR!
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