September News

Khyle is continuing to grow. I can hardly lift him he is so big & that is a very good thing! We started with his new physical therapist Libby & we are doing well. We are trying him in a special chair called a Rifton that helps him sit upright and gain more trunk control. He seems to like the chair and does not tire easily in it, which is very good. Our PT goals are head control, upright sitting and increased mobility.

Coming up we will revisit the GI/Nutrition clinic and also see neurosurgeon Dr. Keating for a 3-month checkup. Also we will go for a general visit to the Craniofacial Clinic and check in with ENT.

Still searching for a pediatrician & home medical supplies provider. I hate the feeling that these medical supply companies are out to fleece us but sadly that is true of many of them. Online I can buy a box of feeding bags for Khyle's pump for about $250. The supply company we were using is charging $560 for the same case of bags!? Unfortunately we have not found another company that is in our network but must keep trying.

Maya is in first grade--yay! and is loving it. The fall weather is so beautiful, cool but sunny. We hope to go for a ride in the Shenandoah Mountains to view the changing of the leaves. Planning to stay in Maryland for Christmas and this does cause Maya some grief but we hope we can have lots of fun. Praying for no blizzards.

Love to all the family & you wonderful friends who keep us so encouraged!! We are blessed!

--check out 'Khyle The Warrior' on Facebook too