On the Seventh Day

Okay I am beginning Khyle's blog with our current crisis.

We are at day 7 at Children's Hospital over a seemingly simple error with Khyle's feeding tube. He pulled it out, we attempted to put it back in ourselves but were unable, we went to local hospital where a surgeon upon attempting to replace tube instead punctured Khyle's stomach lining.

We were then rushed via ambulance to Children's Hospital in DC and prepped for emergency gastric surgery. That was last week Tuesday night/Wednesday morning.

Our first estimate was 2 days, then 5, now here we are at a full week and no one is saying when we might go home anymore.

The primary problem is that Khyle is not processing his food. His belly gets very distended because his bowels are moving so slowly, so then they reduce feeds for a while & then we start again. He had a few days of vomiting but that has stopped. Today I was informed he also has a respiratory infection. They may put in a PICC line tomorrow, which is a long term IV since his IV's keep failing.

I am very exhausted but little sweet Khyle is really the only one who gets to complain. He is sooo sick of this place. He wants to be held, to be cuddled, to sleep in is own bed. he wants to stop being poked and prodded every few minutes and fussed over by dozens of people daily.

That said the care has been wonderful. Doctors and nurses (mostly nurses) attentive around the clock. We were in PICU for one day and now we are in the Surgical Unit recovering as best we can.

Thank you to all of you for your prayers, all the meals & the help with dear Maya.
We shall overcome & be home soon, soon soon.